COOKIE- DAY ONE HUNDRED!!!
Happy Anniversary to YOU! Happy Anniversary to YOU! Happy Anniversary to Dear Wonderful Beautiful Strong COOOKKKKIIIIIEEEEEEEEEEE! Happy Anniversay to YOUUUUU!
Today is Day 100! It's a magical number that signifies that you're body has engraphed and you're lookin' good! You're able to add a few more "goodies" to your low bacteria diet and your meds are being slowing decreased. WAIT! What will happen then?
Well, the combination of all of the magic meds that COOKIE takes are keeping her body in check so as NOT to let the dreaded graph vs. host diseaase peek in.
So far, so good.
As time passes and COOKIE's beautiful body takes over the production of it's own platelets, hemoglobin, hematocrit, white and red blood cells (as it already HAS!!), the amount of meds is s-l-o-w-l-y decreased to put more responsibility on the body.
So far, so good.
COOKIE's intake of the steriod Prednisone is waaayyy down now (no more taken at night!)and a reduced amount in the morning. Her intake of one of the most important drugs, Cyclosporin, is reduced also. Cyclosporin is the ANTI g vs. h disease drug and COOKIE's blood levels of this drug are done weekly in order to keep her in good balance.
So far, so good.
Her little body is stretched to the max. We're treating stretch marks all over her legs and tummy but we're also seeing her appetite decrease somewhat and eventually everything will be back to normal size. She's SUCH a trooper STILL NEVER ANY COMPLAINTS! She's walking around much more and actually starting up some of her household chores in order to make $$$ for shopping!!! oooooo yeah!
We dropped by Dr. Finklestein's office to say hello last Tuesday. We haven't seen him since the beginning of the year when we began going to UCLA. He's looking as dapper as ever and I think he was so thrilled to see his "special COOKIE" and Parker! It's always such a pleasure to share time with him and Cindy! We'll be going back under their care in about 6 weeks! We'll be released from UCLA's care and that will be yet another emotional goodbye! WHAT A STAFF of DOCTOR's we've been so honored to be associated with! How do you POSSIBLY say THANK YOU??????? We're stumped and so very, very grateful.
I hope this finds all of you and your families happy and healthy! Can you believe the summer is 1/2 over????
Much love to each and every one of you,
Cookie, The Grandma

0 Comments:
Post a Comment
<< Home